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Thursday, June 20, 2013

Oh I am bad at blogging !!

I really did not think anyone was reading anything I wrote, I am not a writer, but I do have alot to say, I just have a hard time putting it down. I was relly happy to see that someone was looking for updates on what has been happening with Traveling Pants ~, they have been on a world tour !

I know, can you immagine having something so personal, so tangable, with notes/letters from one to another, experienceing the world around them, I wish the pants could talk, I could only immagine what they must be thinking. LOL !

Right now, Traveling pants are in France ! then off to Isreal, and West Africa, please say lots of well wishes for not only the girls that are a part of the "sisterhood", but also for the pants safe arrival to each destination.

Please know we have pictures and updates on our facebook page, stage4travelingpants, and we do have a website, www.stage4travelingpants.org, keeping up with that ( whew and sigh ) is challenging enough !

Have a safe journey and be loved !

Sunday, February 3, 2013

New destination ~

Pants are on there way to Colorado ! A new state for the pants, a new journey for the girls.

(I had a dream last night) that when we were watching the super bowl today and Keith Urban was singing on a float with his band wearing Traveling Pants T-shirts ! ha ha...THEN a huge announcement came across on the speakers and said that "Red Eye" Research was going to work with us to find out what is causing cancer in women so young.

But, It was only a dream, and I woke up so confused and thought, who, what, when, where and why....

Oh...what do ???

Friday, January 25, 2013

What's Next ?

FINALLY ! The pants website is up and running again, its been down for months since the previous one was hijacked ! I have no idea, but it was messy, so we had to start over. NOT EASY ! I have a whole new respect for website builders !

I have the pants with intentions of them traveling once again, but I need to be sure they are back with Kelly Lange / Metavivor for a trip in Washington D.C in March, So I am a bit hesitant, but they will be fine.

I have often wondered  what would we do when the pants "run out" of room, I have no idea...we get asked that a lot. I hope there is someone out there that can provide a reasonable answer, we shall see.

Well, have a good night folks ! more to come later.

Friday, November 23, 2012

The pants are back safely with Kelly ~ Metavivor !

Well, our pants took travel to Belgium, BUT they had to come back to the USA and it took A LONG, TIME !  Kelly with Metavivor got the pants back...Isn't funny?  I mean....what does the universe have in store for them? I believe everything happens for a reason, and I know the life the pants took on, have a mind of there own now.

What's happening with Stephanie ? well, I really need for her to write in on this, but what she has done is a new CT scan, and will have a new Bone scan done next week to. Her Oncologist told her he wants to try and give her a break again, as she is very stable, but having side effects including, neuropothy (numbness/pain) in hands, feet, legs. Nails are infected, black, jagged...and the loss of hair.

What is the next step for the pants ? that is the question !

Sunday, September 2, 2012

What I have come to learn about the pants ~

        What I have come to learn about the pants ~ Is that it was never meant for me....I always thought I would be the one to make MY voice heard, and let everyone know about how I feel about what has happened to MY family when this sick cancer crept into the life of my sister.

When the pants were released to the world, I had no idea how much it would effect me personally. I had NO idea that when we launched this wholesome / loving / and yet unforgiving cancer life they took on, that I would ever say, "she died". NEVER.....

Since the pants travel, they made it around the world, and still making an impression on each and everyone they touch. Each woman that gets this package with the pants, have letters and cards for them to read along with them. I had always dreamed of there life's being touched by this project, but what I didn't know, was that in 2 years a handful of these women would have died to never see, nor hear about the other women these pants got to know.

They say 1 in 8 women will be diagnosed with breast cancer, that's a staggering thought. I was standing up in my cubicle one day looking around at all the women I work with, we have about 40. As I look around, not one woman has admitted to having breast cancer, and I thought...who's next ?

I have NEVER heard or seen an OBESE woman with breast cancer, sure maybe over weight, but I don't think that's abnormal...and yet they claim weight as being a possible feeding frenzy for cancer...really ? I don't know.


There has been an amazing turn of events that have happened over the last few weeks/month, an amazing woman with her own breast cancer diagnosis has taken metastatic cancer to another level of awareness, reality, and love. AnneMarie Ciccarella.

I truly believe that "things happen for a reason", I don't believe that this project happened by chance...it happened because the universe said so. I believe this is more than the ordinary as AnneMarie said in her blog, I never considered it Extra Ordinary until she said so. Who would have ever thought we would be crossing paths from across the county to get these pants on a journey they will never forget. I thank her deeply.

I had to make a tough decision to "let it go", to know in my heart and soul, that it was NEVER meant to be a Non-Profit organization....It was never meant for ME to control...Its for them. I don't know why I was chosen to start it, but, I know that IT was meant to be.

For some reason my sister thought I could wear her pants, I'm 5'4, and she...5'9...REALLY ?  I think it was her way of telling me who got the gift of height, and she can squash me if she really wanted to right ? ha ha.. what are little sisters for ...I just pretend to let her be the boss...


I always wondered what would happen if a real life "Sister hood " of 'Traveling Pants came to life.
The pants broke out of there cocoon, and spread its wings, just as it was meant to be, full of color, full of life, one touch at a time, now this is what we call love.

Friday, July 13, 2012

We will NEVER be Susan G. Komen, or any of these major fund raising organizations and Im ok with that. I will NEVER cave into the Pink Is Pretty fashion for the sake of the wash. All I simply want to do, Is make the life's of those effected by Metastatic breast cancer to be more enjoyable by offering ways to feel a little bit better, and to know we are here for them.

I am disheartened to hear about Y-ME closing after 30 years. $2 MIL dollars could not keep the doors open any longer...I dont understand this. There major contributors could no longer fund them. There is something wrong with this picture.

Thursday, July 12, 2012

We are all connected ~

In a world of love and hate, we are all connected, and no matter the circumstance, we will all be here for one another weather we like it or not. When I was in my 20's, to early 30's, I would join the relay for life events, listening to the incharge discuss why we are here, the one thing I will never forget hearing, is we will ALL know someone, at some point who will have some form of cancer.

I cannot believe at that time, I had NO ONE that I knew that had cancer, I barely even understood what it was, what it meant, and how it was handled. I actually said (not me). Wow...

Sunday, June 10, 2012

Pants new destination ~

Traveling Pants is in New Zeland, we have some wonderful women who will be recieveing this amazing package going to South Wales, Belgium, and then lastly to England.

Travel safe, and be loved ~

Saturday, June 9, 2012

The Magic 8 Ball

The Magic 8 ball, I love this ball even though, its full of crap and we all know with  the luck of shake, well, is purely luck weather we like its answer or not, is fun to do. I wish I had one of these magic 8 balls when I was kid, I would have definately used it to my advantage!

I will post again shortly :)

Saturday, December 3, 2011

Choosing between life or your home and food.

Fact #1

Co-pays and deductibles are the most challenging and burdened on families of metastatic breast cancer since they often can no longer work, and cost of their care is through the roof leaving many families to choose between food, shelter, and life (medicines).

Tuesday, November 22, 2011

what will we become ?

I just cant help to wonder who, what, when and where.....

Fill in the blanks....

Monday, September 5, 2011

Thursday, September 1, 2011

http://www.denimday.com/team_page.aspx?tid=244600" alt="Support Shannon Kegebein and Lee National Denim Day in their campaign to fight breast cancer.">http://www.denimday.com/images/badge_100x123.png" border="0">
Support Shannon Kegebein and Lee National Denim Day in their campaign to fight breast cancer.

Wednesday, August 31, 2011

The Doctor's.....

When you see your doctor; what do you say to yourself? are you comfortable? does he or she listen to you? what is your gut telling you...

I have had some not so good experiences with Dr.'s in the past...but today was the day I told mine, that I felt she was the best Doctor ANY one could have, and that I felt like I was the luckiest person on the planet to have her. ( I was encased with a wonderful hug i needed) and hopefully she to, needed it :)

I often find myself in the doctor's office on a fine geriatric day, hoping that when I arrive, I am welcomed to break up the monotony. Am I there so often, well, no, but...If you know about my sister Stephanie's experience, you to would be 'paranoid" over things that are probably OK.  Speaking of OK, that is one department my Doctor often states to me, Its OK...Its OK....really, she means its OK if i come in here a dozen times to see her just to be check for "just in case"....(really, i am footing the bill) so why not..I love my Doctor.

Stephanie was given a referral to see a psychiatrist because she complained so much about back pain, rib pain, hip pain, etc etc...its in her head, myofacial pain (muscle pain) and also referred her to see a physical therapist ??  really??  They WOULD NOT order an MRI !  how simple!  she is RN....she is no dummy!

As she collapses in pain, she gets her MRI that they would not do or think to do (oh and blood work!) they did not do that either!  back to the MRI, they found her spine lit up like a Christmas tree !!  4 broken vertebrae in her spine full of tumors stemmed from Breast cancer. AT THE AGE OF 30. Whoa?? did you hear that?? that's why, they said she was to young....why would they ever check that..

I am here to make it clear, it does, and Traveling pants is making its way around the country to make this point ...Life...Priceless....



Tuesday, August 30, 2011

Feeling's

I don't normally post feeling of stuff here, but today, Traveling Pants has left my hands today to visit some friends. As I package up the pants, I take extra care to get MORE photo's "just in case" they dont make it back. The feelings that incase me as i walk up to to Fed Ex knowing they will be leaving in pergatory until they reach their next destination is almost painful yet joyful at the same time.

I look in the box, double checking its contents, praying it does not get lost in the mail, or ends up in a hurricane..As the clerk at the desk ask me what the value is of the package containing the pants; I swell up with a reply of "they are pricelss...., the clerk smiles at me, and sais ok, if only he knew. I walk out leaving the box in there hands without bawling, but inside my gut hurts.

Each time they leave for travel, it gets harder as the pants fill with love from young women that was given a hand they have no control over how their lives will be. A cure...education....

My challenge to all the scientis out there... find that cure, when we have found one for advanced breast cancer, we have found the cure, why cant we at least find a way to make there lives MUCH longer than the older counterpart drugs?  Why is the pharmacutical business so greedy to charge phenominal fee's for those that want to be around for their families. Life....priceless....

Thursday, July 28, 2011

OUCH..

Just when you think its all going ok, SMACK right in the kisser...

Sunday, July 24, 2011

Hmmmmm....

Well, I can only hope that Lee Jeans is working on Traveling Pants ~ being a huge part of Lee Denim Days, why ?  they are working on a cure, they are physically working on a way to detect cancer by a simple blood test before it develops to much in the body. I fully support this, and I know they are going to do it. 

Unfortunately its to late for 3 of our young girls, Lisa Collins, Ana Alvarez, Tracy Santos. Gone but never forgotton. I have to say 'Enough awareness"....We need a cure. Its not a choice.

Traveling Pants have been to North Carolina, and should now be in the hands in New Jersy, after that, Texas... 

I think we need to start Traveling Pants ~ part II     50 and above ,  yes ? yes....